Sometimes my adventures look like the happy, smiling photos I usually share on here, and sometimes my adventures look like this.

There are many valid reasons to use mobility aids besides a total loss of function. Here are my reasons.

The biomedical model’s limitations, combined with its influence on our society, has led to extensive consequences for the patients whose cases fall outside of its narrow scope.

It can be difficult to find reliable or easy-to-read information about my illness, so in this blog post I put together a quick introduction into what CIRS is, how it is diagnosed, and how it is treated.

There are as many unique experiences of disability as there are individuals living with them. In this article, I will offer insight into the particular challenges I face and the privileges I hold in an effort to demonstrate a few of those differences, as well as some common misconceptions about what it means to be disabled.

I learned the hard way that sexism is still common in the medical world: the myth of “female hysteria” remains pervasive, women’s pain is often dismissed, and to some doctors, the only thing that matters is a woman’s fertility.

We need to learn to resist the urge to offer unsolicited and oversimplified medical advice for complex, incurable, chronic medical conditions.

This body is strong. It is powerful, resilient and unstoppable. It is capable. It has gotten me through hell, and it is now getting me through the journey back.

I don’t have a body. I have an amorphous blob of pain floating somewhere beneath my head. It hurts so loud that my ears are ringing. An orchestra of nerve endings vibrating in excruciating symphony.

Here, I offer a summary of my 15 years with MALS, Endo, CIRS, and cPTSD. It has been, as Francis Weller calls it, a rough initiation.